Telaai Milene Wiberg

This is the Daughter of a distant cousin of mine.

Telaai was born last Thursday 8/2/12. After being placed on her mom's chest she turned blue and could not breathe and was transferred to another hospital to undergo testing. 

Shortly thereafter, they found that she could neither breathe on her own or move her arms and legs. She was then life flighted to Primary Children's Hospital.

Here are the updates

"Last night Telaai was transferred to Primary Children's hospital where she underwent test by a Genetic Neurologist to see why she wasn't moving. We talked and got an answer with a doctor who is a specialist in the disease SMA (Spinal Muscular Atrophy and she said our baby is in stage 0 which is the worst stage you could have. She hasn't seen something like this in over 14 years. Telaai's muscles are so weak already and will get progressively worse that she'll never get off a ventilator or feeding tube. The quality of her little life just won't be there as within a very short period of time she will lose all functions of any muscles in her body. We don't get her long, taking a day at a time. Right now she see's us, hears us, knows we are there. Telaai came to this earth to save and teach a lot of people and she has done that ten fold in the days she has been here. She is so brave and so strong and so incredible beautiful. I will get to run and jump and hug her in the millennium but for now, she did what she came here to do. Receive a beautiful body, look at her mommy and daddy and sisters. Thank you for your prayers. We have been asking for a miracle and we got it, her name is Telaai Milene Wiberg."

Today Telaai was taken off life support.

My heart breaks for this family.

Sending many prayers their way.

Here is Telaai's Facebook page. 

Here is the blog.

If there is anyone who would like to make a donation to help the Wibergs pay for Telaai's medical bills and don't live near a Zion's branch, you can mail a check to Zion's Bank 1220 S. 800 E. Orem, UT 84097. Write the check out to the Lyndsie Wiberg Donation Fund and put the account number #041493552 on the check memo line.